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Wednesday, 18 January 2017

Meet 22-year-old Girl Whose Skin Burns Anytime She Steps Outside in the Sunlight (Photos)

Jokita Rivers

A 22-year-old woman left with severe blisters across her face has been told it's because she's allergic to sunlight, Dailymail reports.

The woman identified as Jokiva Rivers started to notice blisters forming across her cheeks and necks when she was 18 - but her doctors were unsure why. When things worsened causing her to struggle to eat, drink and sleep, she consulted her doctors again who made her undergo medical tests to determine what was wrong.

She was told she was suffering from lupus - a genetic condition which can trigger rashes following exposure to the sun. It means that if she ever wants to leave the house then she must cover up or wear sun cream to prevent an outbreak.

Mrs Rivers, from New Orleans, said: 'I was originally misdiagnosed with eczema after I started developing rashes at 18.
'But the flare ups started to become more regular, my face was so red and covered in angry blisters that I didn't feel confident enough to go outside.

'A few months later I had to go to hospital due to kidney failure, then I was informed that I had lupus and things just went downhill from there.

'I struggled to eat, drink, walk, and even sleep. My bed would be covered in sweat every morning and my skin became so red and blistered.'

It has not been an easy experience for her. She now takes 21 pills each day to prevent an outbreak and her husband, Howard, 23, has taken on the role of her carer.

Mrs Rivers added: 'I have been resting and looking after myself loads in the past year as I'm desperate to have a baby with my husband.
'He's been so good to me and there hasn't been any strain on our relationship at all.

'Even though due to my illness I've been unable to be affectionate, he has still stuck by me and supported me all the way through.

'I've lost three stone in the past year and my skin now looks so much better, every day is still a constant struggle but if it wasn't for Howard I could not have got through it.
'I'm desperate to recover enough so that I can work, it's my dream to be a nurse practitioner and that's what I wanted to be at school.'

The condition has even caused her social life to be affected, often preventing her from going out with friends.

NEWS IN PICTURES: VP Osinbajo Visits Gbaramatu Kingdom

On Monday, the 16th of January, 2017, I visited the Gbaramatu Kingdom on behalf of President Muhammadu Buhari. I had the privilege of meeting with his royal majesty, the Pere of the Gbaramatu Kingdom and his chiefs. It was such a warm reception
The message for the people of the Gbaramatu Kingdom and the people of the Niger Delta was short. It was about preparation for the future.
In 2014 alone, there were over 3,700 incidents of pipeline vandalization, from January to June 2016, there were over 1,447 incidents of vandalization. Between 1998 – 2015, over 20,000 persons have died from fire incidents arising from breaching pipelines. These figures do not even take into account the environmental degradation.
Around the Niger Delta, there are signboards of proposed infrastructural projects many of which are uncompleted and some others that are simply abandoned. The city is poor, poor infrastructure, few schools and thousands with health challenges as a result of severe environmental pollution.
From the Niger Delta Development Board in the 60’s to OMPADEC to NDDC, & the Amnesty Programme, many of these projects have not been able to meet the objectives for which they were established.
My message in simple terms is it is time to prepare for the future.
 Unfortunately, there is no time because the future is already here, every citizen should ensure that the future is not worse than today.
We understand that for things to change, three things must happen and l want you to follow the points below closely:
1. We must recognise that the Niger Delta is a special place , a special economic zone for this nation and so must be treated as a special development zone .
2. We must recognise the unique environmental and daring challenges of Niger Delta.
3. The future is full of challenges for the oil industry.

SPECIAL DEVELOPMENT ZONE

Long ago, the Willinks Commission recommended that because of the peculiar environment of the Niger Delta, and the profound challenges, it should be treated as a special development zone. And I agree entirely that this zone has to be treated as a special development zone, but what does this mean in practical terms ?
It means that the Federal Government, State Government and the National Assembly representatives alongside NDDC and the Civil Society representatives of the Niger Delta people must sit together and develop a plan and concrete arrangements for development of the Niger Delta.
There is no excuse for not planning together. The State Government should also be prepared to devote substantial portions of their budgets to this special projects.
The PANDEF has submitted a concise list of 16 dialogue issues that will be extremely helpful in ascertaining the key development priorities for the future of the Niger Delta region.
We must also hold some of the international oil companies accountable to the agreement made with host communities as it relates to development of those areas. We must ensure that in commercial opportunities rising from oil exploration activities, pipelines supervision, contracts should favour host communities.
The critical issue is infrastructure, roads, rails, hospitals and schools .
In the 2017 budget, we have provided for the commencement of the Lagos-Calabar rail way, the coastal railway which will go through the Niger Delta . We are doing this with the Chinese. We will also be visiting Kurutie, the site of the Maritime University.
The President has directed the Ministry of Petroleum to work quickly to see the realization of all of the objectives in implementing this crucial educational institutions. The Bill of the Maritime University have just passed the second reading in the National Assembly and l know we have the commitment of the members of the National Assembly to fast-track this to ensure that the Maritime University can come to fruition as soon as possible
.
All of these are listed in the 16 dialogue document, projects that will benefit not just the Gbaramatu Kingdom but the entire Niger Delta.
But the issue is how to finance, there must be resources and revenue and if the revenue does not come we merely deceive ourselves. Revenue can only come when we are sure that there is peace and I do believe that this must come with justice, legal justice itself is needed for these to be effected.
ENVIRONMENTAL CLEAN-UP
The second thing that must happen in order to ensure that we prepare adequately for the future is the clean- up of environmental degradation of the entire Delta. The Ogoni clean-up has already been flagged off and an implementation committee is in place. For the clean-up not to be a waste of money, we must enforce strict environmental standard for the oil producing companies including regulatory commitments on gas glaring and all our communities must prevent vandalization which is also a major source of environmental degradation.
FUTURE OF OIL
Finally, in preparation for the future, we must understand that the future is full of challenges for the oil industry. And we must recognize that in another 20 to 30 years our oil will not be as precious as it is today and that is reality.
America has stopped buying oil from us. All the countries in the Asia that buy oil now are developing alternative sources of power, China and Japan are developing electric cars. Infact Japan now has more charging stations than petrol stations. Solar power & other various sources of energy are getting cheaper.
We must be smart, we must act intelligently, intentionally and on time. We have a window of opportuniy, we must use our oil to develop our people.
If we don’t take that window of opportunity we will spend that window toying with ourselves. I earnestly hope that we will work together to make sure that we are able to deliver for the future, & for all of our people.
I informed the Youth Councils , that I would take their messages back to Mr. President.
But let me say to all of the young men and women here, the future belongs to you. You are not the leaders of tomorrow, you are the leaders of today because the future is already here, it has come but it comes with tremendous responsibility.
The first responsibility is to ensure peace beacause development cannot rise without peace, the world is moving quickly, we must not waste time.
For President Muhammadu Buhari, every part of this nation is important to him and he is completely committed to ensuring that there is justice in Gbaramatu Kingdom, justice in the Niger Delta , peace and progress in the Niger Delta region.
 
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